I know I have missed Rare Disease Day in previous years so this year I made a point of putting it in my calendar, although pertheskids.org has done a great job at reminding the Perthes community as well!
Next year, perhaps I can better myself and actually organise some form of fundraising/awareness raising activity for the day itself. (However, I have been somewhat pre-occupied with organising something else and REALLY hope I can share this on a later post!! Stay tuned!)
However, I hope I have managed to show some support for this important day by socialising it across my work and non-work social media platforms:
If you’re here reading this and are on Facebook, Twitter or LinkedIn, then please feel free to share to your networks! Thanks for reading!
#rarediseaseday #rarediseaseday2020 #leggcalveperthesdisease
The Cookes Take on Perthes 